Reflections on being involved in dementia research as a former carer. A blog by John Thurman

Reflections on being involved in dementia research as a former carer. A blog by John Thurman* During the day between attending a conference with members of the DEMCOM research team, and writing this blog, I visited my sister Catherine in her new care home. Her dementia is severe: she’s lost […]

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Categories: News, PPI Research theme

PPI payment in research update

PPI payment in research update Changes to HMRC regulations on ‘contractors and intermediaries’ have led to some institutions processing payments for involvement in research through PAYE.  INVOLVE has discussed these changes with HMRC and the Dept of Health’s Tax Advisor, and produced an agreed statement along with INVOLVE’s understanding of […]

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Supporting LGBTQ Young People In Care: co-devising research-led training materials for multi-professional practice.

Supporting LGBTQ Young People In Care: co-devising research-led training materials for multi-professional practice. Type of research Implementation: process evaluation of co-producing research-led training materials with PPI members and stakeholders. Background & Scientific Rationale  This project follows on from a national ESRC funded study called the Speak Out Study: https://www.uea.ac.uk/speakout, which […]

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Impact of Patient and Public Involvement (PPI): Completing the Feedback Cycle

Impact of Patient and Public Involvement (PPI): Completing the Feedback Cycle Background: Patients and Public involvement (PPI) in research is defined as an active partnership between the public and researchers in the research process, rather than the use of people as ‘participants’ of research.  Service users / PPI representatives provide comments to […]

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Categories: Blog, News, PPI Research theme

Older care-home residents and the impact of research activity: A blog from the RReACH Seminar

“You must get our opinion because it’s very easy to assume”:  Older care-home residents and the impact of research activity A blog from the RReACH Seminar, 10 February 2016 In February, the CLAHRC-funded study, Residents Research-Active in Care Homes (RReACH), presented its experiences of collaborating with older care-home residents in […]

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Categories: News, PPI Research theme

Rights-based Rehabilitation:Roundtable Event – Are you a disabled person who has experienced rehabilitation?

Rights-based Rehabilitation:Roundtable Event Are you a disabled person who has experienced rehabilitation? We want to hear about your experiences of it to help shape a new social research project, ‘Rights-based Rehabilitation’. Please come to a roundtable event at UEA. A light meal and refreshments will be provided. All participants will […]

Categories: Blog, News, PPI Research theme

Who are the experts? Reflections on public and patient involvement in research: A blog by Harriet Cooper, PhD Student in the PPI Research Theme

Who are the experts?  Reflections on public and patient involvement in research: A blog by Harriet Cooper, PhD Student in the PPI Research Theme Who decides what a programme of rehabilitation should look like, when someone becomes disabled? When a child or young person is diagnosed with an impairment, does […]

Categories: Blog, PPI Research theme

A step forward: reflections on a workshop on PPI with older care-home residents, 24th November 2015. A blog by Anne Killet and the RReACH Team

A step forward: A blog by Anne Killett and the RReACH Team Our project, “Residents Research-Active in Care Homes” (RReACH), has explored the involvement of older care-home residents as collaborators and advisors in research. We examined past research projects and then interviewed residents and staff in care homes. The results suggested […]