Dementia, Frailty and End of Life Care

Abdelhamid A, Bunn D, Copley M, Cowap V, Dickinson A, Gray L, Howe A, Killett A, Lee J, Li F, Poland F, Potter J, Richardson K, Smithard D, Fox C, Hooper L. Effectiveness of interventions to directly support food and drink intake in people with dementia: systematic review and meta-analysis. BMC Geriatrics. 2016 ;16(1):26. doi: 10.1186/s12877-016-0196-3.

Barclay, S., Froggatt, K., Crang, C., Mathie, E., Handley, M., Iliffe, S., … & Goodman, C. (2014). Living in uncertain times: trajectories to death in residential care homes. British Journal of General Practice64(626), e576-e583

Barclay, S., Whyte, R., Thiemann, P., Benson, J., Wood, D. F., Parker, R. A., & Quince, T. (2014). An Important but Stressful Part of Their Future Work: Medical Students’ Attitudes to Palliative Care Throughout Their Course. Journal of pain and symptom management.

Bunn DK., Abdelhamid A., Copley M., Cowap V., Dickinson A., Howe A., Killett A., Poland F., Potter JF., Richardson K., Smithard D., Fox C., and Hooper L. Effectiveness of interventions to indirectly support food and drink intake in people with dementia: Eating and Drinking Well IN dementiA (EDWINA) systematic review. BMC Geriatrics. 2016; 16:89. doi: 10.1186/s12877-016-0256-8.

Buswell M, Lumbard P, Prothero L, Lee C, Martin S, Fleming J, and Goodman C. Unplanned, urgent and emergency care: what are the roles that EMS plays in providing for older people with dementia? An integrative review of policy, professional recommendations and evidence. Emergency Medicine Journal 2014 Dec 2. doi: 10.1136/emermed-2014-203941

Buswell M, Fleming J, Lumbard P, Prothero LS, Amador S, Goodman C. Difference between how ambulance service personnel use paper and electronic patient care records when attending older people at home. European Journal of Emergency medicine 2015; 22(2): 147 – 148.

Clarke, Gemma, Sarah Galbraith, Jeremy Woodward, Anthony Holland, and Stephen Barclay. “Should they have a percutaneous endoscopic gastrostomy? The importance of assessing decision-making capacity and the central role of a multidisciplinary team.” Clinical Medicine 14, no. 3 (2014): 245-249.

Clarke G, Galbraith S, Woodward J, Holland A, Barclay s. Eating and drinking interventions for people at risk of lacking decision-making capacity: who decides and how? BMC Medical Ethics (2015) 16:41 (PDF)

Clarke G, Johnston S, Corrie P , Kuhn I, and Barclay S. “Withdrawal of anticancer therapy in advanced disease: a systematic literature review.” BMC Cancer 2015 15:892 DOI 10.1186/s12885-015-1862-0 (PDF)

Daveson B, Harding R, Shipman C, Mason B, Epiphaniou E, Higginson I, Ellis-Smith C, Henson L, Munday D, Nanton V, Dale J, Boyd K, Worth A, Barclay S, Donaldson, Murray S. “The Real-World Problem of Care Coordination: A Longitudinal Qualitative Study with Patients Living with Advanced Progressive Illness and Their Unpaid Caregivers.” PloS one 9, no. 5 (2014): e95523.

Docking, R. E., Fleming, J., Brayne, C., Zhao, J., Macfarlane, G. J., & Jones, G. T. (2014). The relationship between back pain and mortality in older adults varies with disability and gender: Results from the Cambridge City over‐75s Cohort (CC75C) study. European Journal of Pain

Farrington C. Blended e-learning and end of life care in nursing homes: a small-scale mixed-methods case study. BMC Palliative Care 2014; 13:31 doi:10.1186/1472-684X-13-31

Fleming J., Farquhar M., Brayne C. and Barclay S. Death and the Oldest Old: Attitudes and Preferences for End-of-Life Care – Qualitative Research within a Population-Based Cohort Study. PLoSOne. 2016; 11940: e0150686.  doi 10.1371/journal.pone.0150686

Fleming, J., Calloway, R., Perrels, A., Farquhar, M., Barclay, S. and Brayne, C. Dying comfortably in very old age with or without dementia in different care settings – a representative “older old” population study. on behalf of the CC75C Cambridge City over-75s Cohort study collaboration
BMC Geriatrics 2017 17/222 DOI 10.1186/s12877-017-0605-2 (PDF)

Fritz, Z. B., & Barclay, S. I. (2014). Patients’ resuscitation preferences in context: Lessons from POLST. Resuscitation85(4), 444-445.

Hoare S, Morris ZS, Kelly MP, Kuhn I, Barclay S (2015) Do Patients Want to Die at Home? A Systematic Review of the UK Literature, Focused on Missing Preferences for Place of Death. PLoS ONE 10(11): e0142723. doi:10.1371/journal.pone.0142723 (PDF).

Kelly S, Lafortune L, Hart N, Cowan K, Fenton M, Brayne C. On behalf of the dementia priority setting partnership. Dementia research priorities: using patient and public involvement and the evidence. Age & Ageing. 2015; 44:985-993. (PDF)

Martin, Steven, et al. “Attitudes and preferences towards screening for dementia: a systematic review.” The Lancet 384 (2014): S49. (PDF)

Norton S, Matthews F, Barnes D, Yaffe K, Brayne C. Potential for primary prevention of Alzheimer’s disease: an analysis of population-based data. Lancet Neurol 2014, 13:788-94.

Olanrewaju O, Clare L, Barnes L, Brayne , CFAS. A multimodal approach to dementia prevention: A report from the Cambridge Institute of Public Health. Alzheimer’s & Dementia:Translational Research & Clinical Interventions. 2015; doi: 0.1016/j.trci.2015.08.003 (PDF)

P Thiemann, T Quince, J Benson, D Wood, and S Barclay.Medical Students’ Death Anxiety: Severity and Association with Psychological Health and Attitudes Toward Palliative Care.   Journal of Pain and Symptom Management.2015. 50(3):335-342.e2. doi: 10.1016/j.jpainsymman.2015.03.014

Spathis A, Booth S, Grove S, Hatcher H, Kuhn I, and Barclay S. Teenage and Young Adult Cancer-Related Fatigue Is Prevalent, Distressing, and Neglected: It Is Time to Intervene. A Systematic Literature Review and Narrative Synthesis. Journal Adolescent and Young Adult Oncology. 2015; 4(1):3-17.

Olanrewaju O, Kelly S, Cowan A, Brayne C, Lafortune L (2016) Physical Activity in Community Dwelling Older People: A Systematic Review of Reviews of Interventions and Context.
PLoS ONE 11(12): e0168614. doi:10.1371/journal.pone.0168614 (PDF)

Hiscock A, Kun I, and Barclay S. Advance care discussions with young people affected by life-limiting neuromuscular diseases: A systematic literature review and narrative synthesis. Neuromuscular Disorders 2017. 27(2) 115-119. http://dx.doi.org/10.1016/j.nmd.2016.11.011

Hiscock A, Kun I, and Barclay S. Advance care discussions with young people affected by life-limiting neuromuscular diseases: A systematic literature review and narrative synthesis. Neuromuscular Disorders 2017. 27(2) 115-119. http://dx.doi.org/10.1016/j.nmd.2016.11.011 (PDF)

Petrova M, Riley J, Abel J, Barclay, S. Crash course in EPaCCS (Electronic Palliative Care Coordination Systems): 8 years of successes and failures in patient data sharing to learn from BMJ Supportive & Palliative Care Published Online First: 16 September 2016. doi: 10.1136/bmjspcare-2015-001059 (PDF)

Mayrhofer A, Mathie E, McKeown J, Bunn F & Goodman C(2017): Age-appropriate services for people diagnosed with young onset dementia YOD): a systematic review, Aging & Mental Health. dx.doi.org/10.1080/13607863.2017.1334038 (

 

Enduring Disability and Disadvantage

Whittington, J. E., Holland, A. J., & Webb, T. (2014). Ageing in people with Prader-Willi syndrome: mortality in the UK population cohort and morbidity in an older sample of adults. Psychological medicine, 1-7.

Ashwin C, Hietanen JK, Baron-Cohen S. Atypical integration of social cues for orienting to gaze direction in adults with autism. Molecular autism. 2015;6(1):5.

Baron-Cohen S, Cassidy S, Auyeung B, Allison C, Achoukhi M, Robertson S, et al. Attenuation of typical sex differences in 800 adults with autism vs. 3,900 controls. PloS one. 2014;9(7):e102251.

Cuberos-Urbano G., Caracuel A., Valls-Serrano C., García-Mochón L., Gracey F., and Verdejo-García A.  A pilot investigation of the potential for incorporating lifelog technology into executive function rehabilitation for enhanced transfer of self-regulation skills to everyday life. Neurospychological Rehabilitation. 2016; 1-13   doi: 10.1080/09602011.2016.1187630

Di Napoli A, Warrier V, Baron-Cohen S, Chakrabarti B. Genetic variation in the oxytocin receptor (OXTR) gene is associated with Asperger Syndrome. Molecular autism. 2014;5(1):48.

Dudas RB, Lovejoy C, Cassidy S, Allison C, Smith P, and Baron-Cohen S. The overlap between autistic spectrum conditions and borderline personality disorder. PLoS ONE. 2017 12(9): e0184447 (PDF)

Farrington C, Clare ICH, Holland AJ, Barrett M, and Oborn, E. Knowledge exchange and integrated services: experiences from an integrated community intellectual (learning) disability service for adults. Journal of Intellectual Disability Research2015; 59: 238–247. doi: 10.1111/jir.12131

Fistein EC., Clare IC., Redley M., and Holland AJ.Tensions between policy and practice: A qualitative analysis of decisions regarding compulsory admission to psychiatric hospital. International Journal of Law Psychiatry. 2016;46:50-7. doi: 10.1016/j.ijlp.2016.02.029

Ford, CEL, Malley D.,  Bateman A., Clare I., Wagner A., Gracey F. Selection and Visualisation of Outcome Measures for Complex Post-Acute Acquired Brain Injury Rehabilitation Interventions. NeuroRehabilitation. 2016; 1-15.  doi: 10.3233/NRE-161339

Gibson J, Kelvin R, and Goodyer I. A call for greater transparency in health policy development: observations from an analysis of child and adolescent mental health policy Evidence & Policy: A Journal of Research, Debate and Practice 2015 11(1):7-18

Goodwin RA., Lincoln NB., and Bateman A. Dysexecutive symptoms and carer strain following acquired brain injury: Changes measured before and after holistic neuropsychological rehabilitation.  NeuroRehabilitation. 2016.    DOI: 10.3233/NRE-161338

Gracey, Fergus, Donna Malley, Adam P. Wagner, and Isabel Clare. “Characterising neuropsychological rehabilitation service users for service design.” Social Care and Neurodisability 5, no. 1 (2014): 16-28.

Grove R, Baillie A, Allison C, Baron-Cohen S, Hoekstra RA. The latent structure of cognitive and emotional empathy in individuals with autism, first-degree relatives and typical individuals. Molecular Autism. 2014;5:42.

Illingworth, J. L., Watson, P., & Ring, H. (2014). Why do seizures occur when they do? Situations perceived to be associated with increased or decreased seizure likelihood in people with epilepsy and intellectual disability. Epilepsy & Behavior39, 78-84.

Kelly CL, Thomson K, Wagner AP, Waters JP, Thompson A, Jones S, Holland AJ, and Redley M. Investigating the widely held belief that men and women with learning disabilities receive poor quality healthcare when admitted to hospital: a single-site study of 30-day readmission rate. Journal of Intellectual Disability Research 2015. doi: 10.1111/jir.12193

Lai MC, Lombardo MV, Ecker C, Chakrabarti B, Suckling J, Bullmore ET, et al. Neuroanatomy of Individual Differences in Language in Adult Males with Autism. Cerebral cortex (New York, NY : 1991). 2014 . doi:10.1093/cercor/bhu21

Larson FV,  Lai MC,  Wagner AP, Baron-Cohen S , and Holland AJ . Testing the ‘Extreme Female Brain’ Theory of Psychosis in Adults with Autism Spectrum Disorder with or without Co-Morbid Psychosis. PLoS One 2015; 10(6):e0128102. doi: 10.1371/journal.pone.0128102

Manning KE, McAllister CJ, Ring HA, Finer N, Kelly CL, Sylvester KP, Fletcher PC, Morrell NW, Garnett MR, Manford MRA and Holland AJ. Novel insights into maladaptive behaviours in Prader–Willi syndrome: serendipitous findings from an open trial of vagus nerve stimulation. Journal of Intellectual Disability Research. 2015; doi: 10.1111/jir.12203 (PDF)

Memarzia J, St Clair M, Owens M, Goodyer IM, and Dunn VJ. Adolescents leaving mental health or social care services: predictors of mental health and psychosocial outcomes one year later. BMC Health Service Research. 2015; 15: 185. doi:  10.1186/s12913-015-0853-9

Perez CM, Ball SL, Wagner AP, Clare ICH, Holland AJ, and Redley M. The incidence of healthcare use, ill health and mortality in adults with intellectual disabilities and mealtime support needs. Journal of Intellectual Disability Research 2014; doi: 10.1111/jir.12167

Perrin, P. B., Norup, A., Caracue, A., Bateman, A., Tjørnlund, M., & Arango-Lasprilla, J. C. An Actor-Partner Interdependence Model of Acquired Brain Injury Patient Impairments and Caregiver Psychosocial Functioning: A Dyadic-Report, Multi-National Study. Journal of Clinical Psychology. 2016.  doi: 10.1002/jclp.22324

Ruzich E, Allison C, Smith P, Watson P, Auyeung B, Ring H, et al. Measuring autistic traits in the general population: a systematic review of the Autism-Spectrum Quotient (AQ) in a nonclinical population sample of 6,900 typical adult males and females. Molecular autism. 2015;6:2.

Ruzich E., Allison C., Smith P., Ring H., Auyeung B., and Baron-Cohen S. The Autism-Spectrum Quotient in Siblings of People With Autism. Autism Research. 2016.   doi: 10.1002/aur.1651

Simblett SK, Gracey F, Ring H, and Bateman A. Measuring coping style following acquired brain injury: A modification of the Coping Inventory for Stressful Situations Using Rasch analysi. British Journal of Clinical Psychology 2014; 29.   doi: 10.1111/bjc.12070

Simblett SK, Ring H, Bateman A.The Dysexecutive Questionnaire Revised (DEX-R): An extended measure of everyday dysexecutive problems after acquired brain injury. Neuropsychological Rehabilitation 2016; 19:1-18. doi:10.1080/09602011.2015.1121880

St Clair, M. C., Croudace, T., Dunn, V. J., Jones, P. B., Herbert, J., & Goodyer, I. M. (2014). Childhood adversity subtypes and depressive symptoms in early and late adolescence. Development and psychopathology, 1-15.Sullivan JC, Tavassoli T, Armstrong K, Baron-Cohen S, Humphrey A. Reliability of self, parental, and researcher measurements of head circumference. Molecular autism. 2014;5(1):2.

Street AJ, Magee WL, Odell-Miller H,  Bateman A, Fachner JC. Home-based Neurologic Music Therapy for Upper Limb Rehabilitation with Stroke Patients at Community Rehabilitation Stage – a Feasibility Study Protocol. Frontiers in Human Neuroscience. 2015; 9:480 doi: 10.3389/fnhum.2015.00480

Sun X, Allison C, Auyeung B, Matthews FE, Norton S, Baron-Cohen S, et al. Psychometric properties of the Mandarin version of the Childhood Autism Spectrum Test (CAST): an exploratory study. Journal of autism and developmental disorders. 2014; 44(7):156Sun X, Allison C, Auyeung B, Baron-Cohen S, Brayne C. Parental concerns, socioeconomic status, and the risk of autism spectrum conditions in a population-based study. Research in developmental disabilities. 2014; 35: 3678–3688

Sun X, Allison C, Auyeung B, Matthews FE, Zhang Z, Baron-Cohen S, et al. Comparison between a Mandarin Chinese version of the Childhood Autism Spectrum Test and the Clancy Autism Behaviour Scale in mainland China. Research in developmental disabilities. 2014; 35(7):1599-1608

Sun X, Allison C, Auyeung B, Zhang Z, Matthews FE, Baron-Cohen S, et al. Validation of existing diagnosis of autism in mainland China using standardised diagnostic instruments. Autism:the international journal of research and practice. 2015 DOI: 10.1177/1362361314556785

Tavassoli T, Hoekstra RA, Baron-Cohen S. The Sensory Perception Quotient (SPQ): development and validation of a new sensory questionnaire for adults with and without autism. Molecular autism. 2014;5:29.

Wakeford S, Hinvest N, Ring H, and Brosnan, M. Autistic characteristics in adults with epilepsy. Epilepsy and Behavior 2014; 41: 203-207.     http://dx.doi.org/10.1016/j.yebeh.2014.09.045

Nishida A, Cadar D, Xu MK, Croudace T, Jones PB, Kuh D, Richards M. Adolescent self organisation and adult smoking and drinking over fifty years follow up: The British 1946 birth cohort. PLoS ONE. 2016; 11 (1), art. (PDF)

Lewis G, Jones PB, Goodyer IM. The ROOTS study: a 10 year review of findings on adolescent depression, and recommendations for future longitudinal research. Social Psychiatry and Psychiatric Epidemiology . 2016;51 (2), pp. 161-170. doi: 10.1007/s00127-015-1150-y. (PDF)

Annus T, Wilson LR, Hong YT, Acosta-Cabron J, Fryer TD, Cardenas-Blanco A, Smith R, Coros I, Coles JP, Aigbirhio FI, Menon DK. The of amyloid accumulation in the brains of adults with Down syndrome. Alzheimers and Dementia. 2015 Sep 9. (Epub ahead of print) doi: 10.1016/j.jalz.2015.07.490. (PDF)

Ring H, Gilbert N, Hook R, Platt A, Smith C, Irvine F, Donaldson C, Jones E, Kelly J, Mander A, Murphy C, Pennington M, Pullen A, Redley M, Rowe S, Wason J. Improving outcomes in adults with epilepsy and intellectual disability (EpAID) using a nurse-led intervention: study protocol for a cluster randomised controlled trial. Trials. 2016. 17:297 (PDF)

Clare, I. C. H., Madden, E. M., Holland, A. J., Farrington, C. J. T., Whitson, S., Broughton, S., Lillywhite, A., et al. (2016). ‘What vision’? Experiences of team members in a community service for adults with intellectual disabilities. Journal of Intellectual Disability Researchhttp://dx.doi.org/10.17863/CAM.787 (PDF)

Gustavo Cuberos-Urbano, Alfonso Caracuel, Carlos Valls-Serrano, Leticia García-Mochón, Fergus Gracey & Antonio Verdejo-García (2016): A pilot investigation of the potential for incorporating lifelong technology into executive function rehabilitation for enhanced transfer of self-regulation skills to everyday life, Neuropsychological Rehabilitation. (PDF)

Perrin P, Norup A, Caracuel A, Bateman A, Tjørnlund M, and Arango-Lasprilla JC. An Actor–Partner Interdependence Model of Acquired Brain Injury Patient Impairments and Caregiver Psychosocial Functioning: A Dyadic-Report, Multinational Study. JOURNAL OF CLINICAL PSYCHOLOGY, Vol. 00(0), 1–15 (2016) C 2016 Wiley Periodicals, Inc. Published online in Wiley Online Library (wileyonlinelibrary.com/journal/jclp). DOI: 10.1002/jclp.22324.(PDF)

Cook EJ, Randhawa G, Sharp C, Ali N, Guppy A, Barton G, Bateman A and Crawford-White J Exploring the factors that influence the decision to adopt and engage with an integrated assistive telehealth and telecare service in Cambridgeshire, UK: a nested qualitative study of patient ‘users’ and ‘non-users’ Cook et al. BMC Health Services Research (2016) 16:137 (PDF)

Catherine Longworth, Joseph Deakins, David Rose & Fergus Gracey (2016):The nature of self-esteem and its relationship to anxiety and depression in adult acquired brain injury, Neuropsychological Rehabilitation, DOI: 10.1080/09602011.2016.1226185 (PDF)

Balasooriya-Smeekens C, Bateman A, Mant J, et al. Barriers and facilitators to staying in work after stroke: insight froman online forum. BMJ Open 2016;6:e009974. doi:10.1136/bmjopen-2015-009974 (PDF)

Lombardo MV, Lai MC, Auyeung B, Holt RJ, Allison C, Smith P, Chakrabarti B, Ruigrok ANV, Suckling J, Bullmore ET, Ecker C, Craig MC, Murphy D, Happe F, Baron-Cohen S. Unsupervised data-driven stratification of mentalizing heterogeneity in autism, April 2016, doi.org/10.1101/034454 (PDF)

Marcus Redley, Merel Pannebakker  Anthony Holland Cambridge Intellectual and Developmental Disabilities research Group; University of Cambridge; Department of Public Health and Primary Care; University of Cambridge; National Institute for health Research (NIHR) Collaboration for Leadership in Applied Health Research and Care (CLAHRC) East of England at Cambridge and Peterborough NHS Foundation Trust, Cambridge (PDF)

Ypma R, Moseley R, Holt RJ, Rughooputh N, Floris D, Chura LR, Spencer M, Baron-Cohen S, Suckling J, Bullmore E, and Rubinov Default Mode Hypoconnectivity Underlies a Sex-Related Autism Spectrum M.2016 Jul;1(4):364-371. (PDF)

Ruzich E, Allison C, Smith P, Watson P, Augeung B, Ring H, Baron- Cohen S. Subgrouping siblings of people with autism: Identifying the broader autism phenotype. DOI: 10.1002/aur.1544 (PDF)

Montgomery CB, Allison C, Lai MC, Cassidy S, Langdon PE, Baron-Cohen S. J Autism Dev Disord. Do Adults with High Functioning Autism or Asperger Syndrome Differ in Empathy and Emotion Recognition? 2016 Jun;46(6):1931-40. doi: 10.1007/s10803-016-2698-4. (PDF)

Uzefovsky F, Allison C, Smith P, Baron-Cohen S. Brief Report: The Go/No-Go Task Online: Inhibitory Control Deficits in Autism in a Large Sample. J Autism Dev Disord. 2016 Aug;46(8):2774-9. doi: 10.1007/s10803-016-2788-3. (PDF)

Adlam, A., Adams, M., Turnbull, O, Yeates, G., Gracey, F. (2016). The Bangor gambling task: Characterising the performance of survivors of traumatic brain injury. Brain Impairment. 2016 (PDF)

Redley M, Pannebakker M and Holland A. Improving the Health and Well-Being of Adults With Conditions of a Genetic Origin: Views from Professionals, Syndrome Support Groups and Parents. 24 October 2016, DOI: 10.1111/jar.12293. (PDF)

Lee, C. (2016). Preparing transition from child and adolescent mental health services (CAMHS): evaluating a creative participatory approach. Social Research Practice, 2 11-19.https://doi.org/10.17863/CAM.857 (PDF)

Gracey F, Fish JE, Greenfield E, Bateman A, Malley D, Hardy G, Inhgam J, Evans JJ, Manly T.  A Randomized Controlled Trial of Assisted Intention Monitoring for the Rehabilitation of Executive Impairments Following Acquired Brain Injury. Neurorehabilitation and Neural Repair 2016. 1-11. DOI: 10.1177/1545968316680484 (PDF)

Larson FV, Wagner AP, Jones PB, Tantam D, Lai M, Baron-Cohen S et al. Psychosis in autism: comparison of the features of both conditions in a dually affected cohort. The British Journal of Psychiatry 2016; 10.1192/bjp.bp.116.187682 (PDF)

Annus T, Wilson LR, Hong Y T, Acosta–Cabronero J, Fryer T D, Cardenas–Blanco A, Smith R, Boros I, Coles JP, Aigbirhio F, Menon D, Zaman S, Nestor PJ, &  Holland A J.  The pattern of amyloid accumulation in the brains of adults with Down syndrome. Alzheimer’s & Dementia.2016.12(5): 538-545 (PDF)

Larson FV, Wagner AP, Jones PB, Tantam D, Lai MC, Baron-Cohen S, Holland AJ. Psychosis in autism: comparison of the features of both conditions in a dually affected cohort. The British Journal of Psychiatry Dec 2016, bjp.bp.116.187682; DOI: 10.1192/bjp.bp.116.187682 (PDF)

Goodwin RA, Lincoln NB, and Bateman A. Dysexecutive symptoms and carer strain following acquired brain injury: Changes measured before and after holistic neuropsychological rehabilitation. NeuroRehabilitation. 2016. 18;39(1):53-64. doi: 10.3233/NRE-161338 (PDF)

Dunn V; Young Service Users, Providers and Researchers Collaborate to Co-Produce a Preparation programme for young people leaving child and adolescent mental health services at; 17/18 BMJ Open 2017;7:bmjopen-2017-016492.20. doi: 10.1136/bmjopen-2017-016492.20 (PDF)

Annus T, Wilson LR, Hong Y T, Acosta–Cabronero J, Fryer T D, Cardenas–Blanco A, Smith R, Boros I, Coles JP, Aigbirhio F, Menon D, Zaman S, Nestor PJ, &  Holland A J.  The pattern of amyloid accumulation in the brains of adults with Down syndrome. Alzheimer’s & Dementia.2016.12(5): 538-545 (PDF

Perez CM, Wagner AP, Ball SL, White SR, Clare ICH, Holland AJ, Redley M. Prognostic models for identifying adults with intellectual disabilities and mealtime support needs who are at greatest risk of respiratory infection and emergency hospitalisation. J Intellectual Disability Research. 2017. 61: 737–754. doi:10.1111/jir.12376 (PDF)

Hull, L., Petrides, K.V., Allison, C. et al.“Putting on My Best Normal”: Social Camouflaging in Adults with Autism Spectrum Conditions J Autism Dev Disord (2017) 47: 2519. https://doi.org/10.1007/s10803-017-3166-5 (PDF)

 

Innovation and Evaluation

Evans M, Gregory A, Feder G, Howarth E, and Hegarty K. “Even ‘Daily’ is Not Enough”: How Well Do We Measure Domestic Violence and Abuse?-A Think-Aloud Study of a Commonly Used Self-Report Scale. Violence and Victims 2016; 31(1):3-26.  doi: 10.1891/0886-6708.VV-D-15-00024.

Howarth E, Moore THM, Shaw ARG, Welton NJ, Feder GS, Hester M, MacMillan HL, and Stanley N.  The Effectiveness of Targeted Interventions for Children Exposed to Domestic Violence: Measuring Success in Ways that Matter to Children, Parents and Professionals. Child Abuse Review 2015; 24: 297–310. doi: 10.1002/car.2408.

Khandaker M , Pearson RM, Zammit S, Lewis G, Jones PB. Association of Serum Interleukin 6 and C-Reactive Protein in Childhood With Depression and Psychosis in Young Adult Life A Population-Based Longitudinal Study. JAMA Psychiatry 2014  doi:10.1001/jamapsychiatry.2014.1332

Lee C, Haggith A, Mann N, Kuhn I, Cater F, Eden B, and Van Bortel T. Older Prisoners and the Care Act 2014: An examination of policy, pratice and models of social care delivery. Prison Service Journal 2016; 224: 35-41

Jacob R, Luen Wong AM, Hayhurst C, Watson P and Morrison CE. Designing services for frequent attenders to the emergency department: a characterisation of this population to inform service design Clinical Medicine 2016 Vol 16, No 4: 325–9 (PDF)

Ruzich E, Allison C, Smith P, Ring H, Auyeung B, and Baron-Cohen S The Autism-Spectrum Quotient in Siblings of People With Autism Autism Res. 2016 Jun 22. doi: 10.1002/aur.1651.(PDF)

Street AJ, Magee WL, Odell-Miller H, Bateman A , Fachner JC. Home-based Neurologic Music Therapy for Upper Limb Rehabilitation with Stroke Patients at Community Rehabilitation Stage – a Feasibility Study Protocol. Frontiers in Human Neuroscience. 2015; 9:480 doi: 10.3389/fnhum.2015.00480 (PDF)

Neufeld S, Dunn VJ, Jones PB, Croudace TJ, Goodyer IM. Reduction in adolescent depression after contact with mental health services: a longitudinal cohort study in the UKJanuary 10, 2017 http://dx.doi.org/10.1016/ S2215-0366(17)30002-0 (PDF)

Howarth E, Moore THM, Welton NJ, Lewis N, Stanley N, MacMillan H, et al. IMPRoving Outcomes for children exposed to domestic ViolencE (IMPROVE): an evidence synthesis. Public Health Res 2016;4(10) (PDF)

Kirkbride, JB; Hameed, Y; Wright, L; Russell, K; Knight, C; Perez, J; Jones, PB; (2017) Waiting time variation in Early Intervention Psychosis services: longitudinal evidence from the SEPEA naturalistic cohort study. Social Psychiatry and Psychiatric (PDF)

Dickerson E, Fenge LA, Rosenorn-Lanng E, (2017) “The impact of leadership development on GP mental health commissioning”, Leadership in Health Services, Vol. 30 Issue: 3, pp.343-351. (PDF)

 

Patient and Public Involvement

Backhouse T, Kenkmann A, Lane K, Penhale B, Poland F, and Killet A. Older care-home residents as collaborators or advisors in research: a systematic review. Age and Ageing, 2016; 0:1–9 doi: 10.1093/ageing/afv201  (PDF)

 

Patient Safety

Card AJ, Simsekler MCE, Clark M, Ward JR, Clarkson PJ. Use of the Generating Options for Active Risk Control (GO-ARC) Technique Can Lead to More Robust Risk Control Options. Int J Risk Saf Med. International Journal of Risk and Safety in Medicine 2014; 26: 199-211. http://dx.doi.org/10.3233/JRS-140636

Card AJ, Ward JR, and Clarkson PJ. Rebalancing risk management—Part 1: The Process for Active Risk Control (PARC). Journal of Healthcare Risk Management 2014; 34: 21–30. doi: 10.1002/jhrm.21155

Card AJ, Ward JR, Clarkson PJ. Rebalancing Risk Management-Part 2: The Active Risk Control (ARC) Toolkit . J Healthc Risk Manag. 2015;34(3):4-17.

Komashie A, Mousavi A, Clarkson PJ, and Young, T. An Integrated Model of Patient and Staff Satisfaction Using Queuing Theory IEEE Journal of Translational Engineering in Health and Medicine 2015 doi: 10.1109/JTEHM.2015.2400436

Ruggeri K, Wollner P. Transatlantic health IT policies: opportunities for small businesses and health systems. Telemedicine Journal and E-Health. 2014 Jun;20(6):601–3. doi: 10.1089/tmj.2013.0322

Simsekler ME, Card AJ, Ruggeri K, Ward JR, Clarkson PJ. A comparison of the methods used to support risk identification for patient safety in one UK NHS foundation trust. Clinical Risk. 2015 Mar 1;21(2-3):37–46

 

Health Economics

Yan Fend, Nancy Devlin, Andrew Bateman, Bernada Zamora, David Parkin The Distribution of the WQ-5D-5L indez in Patient Populations. (PDF)