Do you have end of life care experience? Can you help with a new survey?

The Co-Care project: research into volunteer-led support for caregivers

Care givers

This project is supported by the National Council for Palliative Care (NCPC) and Dying Matters.
Funded by the National Institute of Health Research (NIHR), researchers from the Faculty of Health Sciences, Southampton University, together with NCPC, are conducting a survey of how volunteers provide support for family caregivers at home. We know that providing effective palliative and end-of-life care for people at home depends on the work of unpaid family caregivers.

The Co-Care project is building on previous research that suggests that receiving support such as befriending or home visitation may benefit caregivers who are providing care at home. The information from the survey will be used to build a picture of the kind of support that volunteers provide nationally. It will also help us to understand what is most important to volunteers, family caregivers, and managers. Information from the survey will contribute to plans for a larger project to work with volunteers, families, and health care professionals to evaluate the benefits of volunteer-led support for family caregivers in the community. As a caregiver, or someone with knowledge or experience of palliative or end-of-life care, you might be able to help with the survey.

  • To take part in the survey and for more information please follow this link:
  • Completing the survey should take around 10-15 minutes.
  • Participation is entirely voluntary and any information you give will be anonymous (unless you give permission to be contacted) and will be treated confidentially.
  • Click here for more information about taking part in the survey. If you have any questions about the survey or the Co-Care project, please contact Dr Christopher Bailey, Lead Investigator, Faculty of Health Sciences, University of Southampton at or on 023 8059 7861.

Thank you for taking the time to consider taking part.

Share this article
Tweet about this on Twitter