CHAIN subgroup SMOLTC (Self-management of long-term conditions) introduce six new volunteer co-facilitators
Six new volunteer co-facilitators have joined the Self-management of long-term conditions (SMOLTC) sub-group, offering very diverse expertise, though complementary fields of interest in the context of SMOLTC.
The introductions below will enable specific requests or questions to be targeted toward the co-facilitator of best fit, however if unsure, please direct any enquiries or requests to CHAIN9 (email@example.com) who will forward as appropriate.
Steve Aldington, Retinopathy Research & Professional Development Manager, Gloucester Hospitals NHS Foundation
“Having worked in diabetes and associated diabetic retinopathy for nearly 35 years now, I have seen far too many devastating cases where increased self-management of the condition should have prevented life-changing morbidity including severe visual loss, renal failure, amputation, premature shortening of working life and catastrophic reduction in life quality. We need to change the mind-set which presumes and accepts that external medical intervention and advice, perhaps only twice a year, is sufficient to deal with the complexities of daily living with diabetes. There has to be a better way”.
Judith Carrier, Senior Lecturer and Director of Postgraduate Studies (taught), Cardiff University
“I am a senior lecturer at the School of Healthcare Sciences, Cardiff University. My clinical background prior to this was in practice nursing and my teaching and research interests include all aspects of long term conditions, specifically diabetes and self-management, evidence synthesis and utilisation. My publications include a textbook, Carrier (2015) Managing Long-term Conditions and Chronic Illness in Primary Care-a guide to good practice (2nd ed.) which includes a chapter on self management. I’m happy to point people in the right direction towards appropriate resources: policy, research and websites where information on self-management can be sourced, or discuss any queries regarding the existing plethora of information”.
Femidah Munir, Reader in Health Psychology, Loughborough University
“I am a reader in health psychology and my research specialism is in identifying important self-management needs in the workplace for those with a long term health condition. I am particularly interested in designing and delivering workplace interventions for self-management of long-term condition”.
Andrew Nwosu, Regional Lead for Allied Health Professionals, NHS England (London)
“I provide clinical and professional leadership for all Allied Health Professionals within the London region, focusing on developing and communicating the vision for the role of AHPs in improvement, efficiency and innovation. I have worked within the health and social care sector as a clinician for over 15 years and believe that AHPs have a key role to play in the transformation of the health and social care landscape. My background is in Neuro Physiotherapy with a special interest in ageing health and biomechanics”.
Magdalena Skrybant, CLAHRC West Midlands PPIE Lead, University of Birmingham
“I’m a patient with several long-term conditions. Over the past fifteen years, it’s been a challenge to learn to live with and manage my conditions and still lead the life I want to. I’ve battled, sometimes I’ve even won, but I’ve also learnt (sometimes the hard way) that some battles aren’t worth fighting! I can bring my own experiences as a patient with several long term conditions to the group and how this impacts on all aspects of my life. Professionally, I’m fortunate to be in a role I love, which is leading Patient and Public Involvement and Engagement for CLAHRC West Midlands. My particular areas of interest are patient and public involvement in research, particularly research into long term conditions, the value of patient experiences, the benefits of involving patients and the public in the implementation of research.”
Robert Standfield, Head of Education, St. Richard’s Hospice, Worcester
“I am Head of Education at St. Richard’s Hospice in Worcester. I started my career in the NHS as a Healthcare Assistant in a large psychiatric hospital and finished it in a project manager role related to workforce development in the Department of Health. During the intervening years I worked a Staff Nurse, Community Psychiatric Nurse, Directorate Manager in an acute hospital and then workforce development roles including Director of Workforce in a Strategic Health Authority. I led on the development and introduction of the Physician Associate (Assistant) role whilst working at the NHS Modernisation Agency. I also led on the development of a range of support worker competence frameworks and supporting employers introduce new roles and new ways of working. Working in a hospice that is looking to engage with people earlier in their care pathway provides a fantastic opportunity to innovate and encourage through self-management”.
CHAIN is a successful online mutual support network of people working in health and social care.
The Network originated 19 years ago in the NHS Research & Development programme in England. It is multi-professional and cross organisational, and is designed to connect like-minded health and social care practitioners, educators, researchers and managers. CHAIN now covers the whole of the UK and is also becoming international, with smaller satellites in Australia, Canada, Scandinavia, Italy, Spain and members in 40 other countries worldwide. CHAIN is a not-for-profit organisation; the network is free to join and use; and its costs are met by a consortium of stakeholders.
CHAIN is open to anyone working in health and social care. Involvement in the family of organisations involved in health & social care; being willing to share experience and aspirations, and being prepared to respond to other members’ questions are the only criteria for joining CHAIN.
For more information on CHAIN and joining the network please visit website.