Get a GRIPP2! Top 5 Things You Need to Know About
Reporting Patient and Public Involvement in Your Research Project
Whilst we know that involving patients and the public can bring a wealth of benefits to research, we have the challenge of poor reporting – not unusual in health research. This means we need to strengthen the Patient and Public Involvement (PPI) evidence-base to inform the research community on what works best in what contexts. GRIPP2 aims to address this need and support high quality reporting to develop a strong evidence-base on PPI in research, helping ensure that evidence on PPI is transparent, consistent and informs evidence-based practice.
Reporting PPI is everyone’s responsibility. Here is a list of the top five things you need to know about GRIPP2 and reporting PPI:
1. GRIPP2 was developed using the EQUATOR method for developing guidance. This included doing a systematic review of existing evidence on PPI; undertaking a 3-stage Delphi survey; and hosting a face-to-face collaborative meeting to develop consensus on what should be included in the guidelines.
2. There are two forms of GRIPP2: a Long Form (GRIPP2-LF) and a Short Form (GRIPP2-SF). GRIPP2 provides a useful framework for reporting PPI in your research. The Long and Short Forms of GRIPP2 are available on the EQUATOR webpage: www.equator-network.org/
3. GRIPP2-LF can be used when Patient and Public Involvement is the main focus of a study. In the LF version of GRIPP2, you can report your PPI against 34 items in the following sections: Abstract; Background; Aims; Methods; Capture or Measurement of PPI; Impact; Economic Assessment; Study Results; Discussion and Conclusions.
4. GRIPP2-SF can be used where there are some elements of PPI in a study, but where PPI is not the main focus. You can report your PPI against 5 sections: Aims; Methods; Study Results; Discussion and Conclusions; Reflections and Critical Perspectives. Items can be reported in the main body of your paper or in a separate box. The GRIPP2 article includes an example of how the SF (Table 3) can be used to report PPI.
5. When using GRIPP2, it’s important to remember that you don’t need to put something against each item. You only need to report PPI where you have information.
1. Don’t leave completing GRIPP2 to the end of your study. Fill in the checklists as you are going along! By doing this, you can be sure not to leave anything out. You can even use it to help plan your study.
2. Report everything – warts and all! We need a strong evidence-base, and we can only move forward if we have consistent reporting that gives an accurate reflection of what happened.
By using GRIPP2 to report the PPI in your research, you’ll be contributing to our evidence-base of ‘what works’ in relation to PPI. As PPI is becoming embedded in research, we need to make sure that the ways we involve patients and the public is based on quality evidence. We need to learn from each other, and knowing what works (and what doesn’t work) will help ensure that resources for involving patients and the public are put to most effective use.