dementia, frailty and end of life care
Last updated on
Sue trained as a Mental Health Nurse in West London in 1995 working in an Older Adults Day Hospital and then a Community Mental Health Team completing her Specialist Practitioner qualification in 2002. From there Sue worked in a variety of clinical settings with people with dementia and complex needs. Providing assessment, diagnosis and ongoing treatment for people at home, in long term care and in hospital. Sue has also managed a Regional Training and Development team providing accredited health and social care qualifications for staff working in domically, residential and community based services and has taught in both further…
Dr Alice Shiner gained her MBChB (Hons) at the University of Manchester in 2003 and holds a BSc (Hons) in International Health from University College London (2002). She also holds a Masters in Clinical Education from the University of East Anglia (2011) and is a Fellow of the Royal College of General Practitioners. She is an academic GP, dividing her time between research, education and clinical practice. Her current research interests focus on multimorbidity, care planning, shared decision making and the GP workforce. She has expertise in qualitative research that she gained through her Masters study, which explored the transition…
Caroline Lee is a Research Associate at the Institute of Public Health, with over 20 years’ experience in project and programme evaluation and research across policy areas, including education, employment, childcare, health and public health. Recent projects include: reviewing the potential of time credit systems for improving public health; developing age-friendly rural communities: the contribution of local participatory planning processes; supporting local commissioners in evaluating the Healthy Fenland Fund; increasing attention to ethnicity and migration within public health; engaging communities in thinking about dementia risk; investigating approaches to peer support for older prisoners; and evaluating a creative participatory workshop approach…
Rachel Daly is a Queens Nurse and a District Nurse by background; she has been leading an integrated team of health and social care professionals in supporting the care sector in improving the quality of care prior to commencing her PhD focussing on Dementia Care in Care Homes at the University Hertfordshire. Rachel is particularly interested in integrated care and understanding the experience of people with dementia and their carers and has recently studied to become a Best Interest Assessor at Bournemouth University.
Dr Joyce Coker is a Research Associate in the Dementia, Frailty and End of Life theme. She is based in the Cambridge Institute of Public Health and has a background in Human Physiology and Public Health. During her PhD (University of Leeds, 2015), she used quantitative and qualitative research methods to examine the influence of statin-use on the dietary and exercise patterns; health beliefs; and perceived availability of social support of adults at risk of cardiovascular disease in South Yorkshire and in urban and semi-urban cities in Nigeria. She currently works on the Frailty Trajectories project which aims to optimise…
Professor Carol Brayne is an epidemiologist and public health physician. Her research programme includes research into dementia, healthy ageing and neuropsychiatric epidemiology. The research is multidisciplinary and the Cambridge team straddles the Department of Public health and Primary Care, and the MRC Biostatics Unit (Led by Dr Fiona Matthews). The MRC study of Cognitive Function and Ageing (CFAS) constitutes a major part of the research of this group. Ageing of the global population will be an area of policy interest for many decades as the numbers of old-old individuals increases dramatically. Carol is also Director of the Cambridge Institute of…
Linda Barnes is Senior Study Coordinator of the Cognitive Function and Ageing Studies which are population based studies of individuals aged 65 years and over living in the community, including institutions. Linda's research interests are Dementia, healthy ageing and neuropsychiatric epidemiology. Linda worked with Professor Carol Brayne on the Population Dementia Risk Reduction project.
Angela has worked for the University of Cambridge since 2007. As Research PA to Dr Stephen Barclay, Angela joined CLAHRC CP in August 2009 as administrative support to the Palliative/CLAHRC End of Life Care worksteams
Dr Mila Petrova background is in psychology, philosophy and literature. She has worked primarily on issues of organisational change and new roles in the health services, end of life care, health information technology, research synthesis (including her PhD on how we transform evidence for the purposes of systematic reviews and other synthesis studies) and health-related values. More recently Mila was a Research Associate at the Palliative and End of Life Care Group of the Primary Care Unit, Department of Public Health and Primary Care, University of Cambridge. Together with Dr Stephen Barclay, she is completed the “Prepared to Share?” study…
Dr Sarah Hoare is a sociologist whose work explores palliative and end-of-life care. She completed her part CLAHRC-funded PhD on hospital admissions for patients close to the end of life (ACE Study) within the Dementia, Frailty and End of Life Care Theme. Sarah is a member of Cambridge Palliative and End of Life Care Group, and is currently exploring practical ways to facilitate the redesign of community end-of-life care provision. Before joining CLAHRC East of England, Sarah completed an undergraduate degree in Politics and Sociology at the University of Exeter and an MPhil in Educational Research at Trinity Hall, University…
Dr Stephen Barclay qualified in 1981 following medical training in Cambridge and Oxford. After GP training in Bristol he started GP work in a market town practice in the Cambridgeshire Fens and then in 1990 moved to a GP practice in Cambridge. He continues to work clinically in both General Practice and Palliative Medicine and is Honorary Consultant in Palliative Medicine at the Arthur Rank House hospice and at Addenbrooke’s Hospital in Cambridge. He leads the teaching of Palliative Care in the School of Clinical Medicine of the University of Cambridge and is Clinical Lead for End of Life Care…
Dr Gemma Clarke is the project lead on the Future Care Study which examines feeding issues at the end of life for those with progressive neurological disease. Previously she has worked on decision-making concerning artificial nutrition for those at risk of lacking capacity, and decisions to stop oral palliative anticancer drugs. Before joining CLAHRC, Gemma completed her PhD at the Institute of Criminology, Gonville and Caius College.
My main areas of work have involved evidence based mental health, pharmacological and non-pharmacological interventions in dementia. I have developed areas of dementia health service research in primary care, care homes and acute hospital settings. Current research themes are focused on enhancing care for patients with established with dementia and improving early intervention and prevention strategies. My research work is currently funded by the National Institute of Health Research, industry and charitable foundations. I have a national and international network of research collaborators and I am recognised internationally as a leading researcher in older peoples’ mental health.
Dr Louise Lafortune is a Senior Research Associate in the Dementia, Frailty and End of life care theme. She has a background in Neurosciences, Public Health and Ageing, and nine years of industry experience in clinical trial, health economics and outcomes research. Her research interests encompass the development, evaluation and implementation of innovative methods and service delivery models aimed at improving care for individuals with complex health and social care needs, namely frail older people. Concerned with the practical application of research findings for patient benefits, her responsibilities include knowledge synthesis, public health analysis and evaluation of changes in services…
Dr Jane Fleming joined the University of Cambridge’s Department of Public Health and Primary Care in 2000 for training in epidemiology and statistics from a clinical and research background primarily in nursing older people, osteoporosis and fracture prevention. She is a study co-ordinator for the Cambridge City over-75s Cohort (CC75C) study, and during her health services research doctorate she expanded the CC75C study’s focus to include a prospective study of falls amongst over-90-year-olds. She has since been leading a project combining qualitative and quantitative methodologies to examine end-of-life care issues from the perspective of very old people and their carers…
Cathy Alban Jones Cathy Alban Jones is a Nurse Consultant at St Elizabeth Hospice in Ipswich. She has been working in palliative and end of life care for over 25 years both in hospital and hospice. She sees patients with both malignant and non malignant diseases and has been increasingly aware of, and interested in the impact of fatigue, a prevalent symptom, on these patients and their families. For the CLAHRC Fellowship Cathy will be looking at the perception and understanding of patient fatigue among hospice staff and the impact on them of caring for patients with fatigue. She is…
Dr Lee Hooper is a NIHR Career Development Fellow, carrying out research to identify the early stages of dehydration in older people. She is a dietitian and nutritionist with a long term interest in the nutrition and hydration of older people. She is an expert systematic reviewer and has developed, managed and authored many systematic reviews. Lee has been an editor for the Cochrane Heart Group for 12 years, was an editor of the Cochrane Oral Health Group for 5 years, and regularly referees systematic reviews for top medical and nutrition journals. Lee has a BSc in Biochemistry, PhD (University…
Diane is a Lecturer in Nursing Sciences (Adult) at the University of East Anglia (UEA). Diane is a nurse by background with current research focusing on hydration and nutritional care in older people living in care homes.
Kate Spence has 30 years’ experience as a nurse. After a number of roles in various hospitals, in 1997 she attained her Specialist practitioner qualification in District Nursing (DN) and moved to the community. In 2014 she was supported by NIHR to complete a MSc in Clinical Research at Newcastle University. Kate’s current role is Clinical lead for District nursing and Community Matrons at East Coast Community Healthcare, a social enterprise providing community services across Norfolk and Waveney. Kate is passionate about delivering evidence based clinical practice in the community. During her CLAHRC fellowship, she will explore what is required…
Dr Asmaa Abdelhamid is Senior Research Associate in Norwich Medical School. In addition to her clinical background as a community paediatrician, she has a wide range of research skills and experience especially research synthesis and evidence based medicine. She has worked on and published many systematic and other reviews. Research interests are broad and include preventive medicine and research synthesis. Asmaa worked on CLAHRC project 'Eating and Drinking Well IN dementiA' (EDWINA) which included a systematic review on the interventions to improve oral food and/or drink intake in people with dementia.
Dr Angela Dickinson is a Senior Research Fellow in Older People’s Health at the Centre for Research in Public Health and Community Care (CRIPACC), University of Hertfordshire. She is a social scientist with a background in nursing and nutrition. Her research interests include nutrition, falls, as well as the development and evaluation of health and social care services for older people, with a particular focus on older people’s views and experiences. Recent research includes evaluation of falls in acute settings for older people in an acute mental health setting funded by NIHR RfPB, along with a systematic review and a…
Sam Treacy is currently working on projects focused on older prisoners at the University of Cambridge, as part of the Cambridge Institute of Public Health. She has previously worked on research evaluating services and interventions for people with mental health or substance misuse problems, as well as exploring their experiences of stigma and discrimination. Sam also worked within NHS mental health services across community, inpatient and forensic settings for a number of years.
Dr Marina Buswell has both a research background and experience working in the NHS. She has worked in PCTs in health promotion (as a stop smoking facilitator) and then commissioning information. Her PhD (2001, Cambridge) is in organic chemistry and from there she moved to work at the Commission for Health Improvement on clinical governance reviews, investigations and evaluating the CHD National Service Framework. Her research interests developed through studying part-time for a Masters in Public Health (Kings, 2006) and she carried out a qualitative evaluation of a school-based stop smoking pilot project for the MPH dissertation. Marina previously worked…
Judith is a Consultant in Rehabilitation Medicine based in Cambridge who meets people recovering from brain injury at all stages of the recovery pathway. She has had a particular interest in Neurological rehabilitation and recovery mechanisms after traumatic brain injury ever since her laboratory based PhD on the role of cell cyle genes in nerve cell regeneration. She is based in Addenbrookes and has been the Clinical Lead for the County wide head injury service for the last 10 years and is now Chief Investigator with the Cambridge research team investigating multimodal assessments of prolonged Disorders of Consciousness. She is…
Dr. Pranathi Ramachandra DPM, MRCPsych is a psychiatrist trained in the UK and in India, and has higher specialist qualifications in old age and general adult psychiatry. She is primarily a clinician but has also been involved in clinical research in a variety of conditions in both countries. She currently works as a consultant psychiatrist in the Older Adults’ Mental Health Services in Cambridge. She is actively involved in dementia research in collaboration with the University of Cambridge department of Psychiatry, the NIHR and industry.
Serge Engamba is a GP and Honorary Research Associate at the University of East Anglia. He holds an MD and MSc (Public Health and Partnerships in Care) and has recently completed an Academic Clinical Fellowship in General Practice. His research interest is focused on enhancing health service delivery for patients with mental health problems, multimorbidity, and complex social issues. During the CLAHRC Fellowship he will carry out a service evaluation of a novel Nurse-led home visiting service initiated by the Norwich GP Provider Organisation OneNorwich
Jackie Buck is Lecturer in Adult Nursing, School of Health Sciences, at the University of East Anglia where she is the academic lead for Research Teaching on the MSc in Adult Nursing. Her research interests are communication and decision making in health care, improving quality of life of older people living at home and support for end-of-life care in the community. Jackie qualified with a BSc in Nursing Studies from the Robert Gordon University, Aberdeen, in 1998. Following a varied clinical career that included coronary care and care of the elderly, she completed an MSc in Health Services and Public…
Since qualifying as a mental health nurse in 2010, I have always worked with people who have dementia; on an acute dementia ward, as a memory assessor, dementia liaison nurse at a general hospital and as a community dementia nurse. Even in my relatively short time as a nurse, opportunities for higher education have grown noticeably. Initially I undertook a Postgraduate Certificate in Dementia Leadership, shortly afterwards I successfully completed the MSc in Clinical Research at the UEA. During the MSc I constructed a systematic review in Dementia Diagnostic Counselling and this led to my successful appointment to the CLAHRC…
Professor Claire Goodman is a NIHR Senior Investigator She is a district nurse by background and Professor of Health Care Research at the Centre for Research in Public Health and Community Care (CRIPACC) at the University of Hertfordshire. Her research focuses on the oldest old and how primary health care works with social care and long term care providers to support this population. She leads a programme of nationally funded studies that focus on the needs of the oldest old living at home and in long term care. She is lead investigator for the DH PRP funded DEMCOM study a…