EDD theme
Transforming Care: the use of Positive Behaviour Support to enable children and young people to remain in their local communities Project title: Transforming Care: the use of Positive Behaviour Support to enable children and young people to remain in their local communities Background: The Transforming Care agenda results from the […]
Project title: Feeding practices and eating behaviours in Down syndrome: Perspectives from healthcare professionals Background: Approximately 740 babies with Down Syndrome (DS) are born in England and Wales every year, and this birth rate has remained relatively stable since 1989 (Morris & Alberman, 2009). A recent audit in England shows that […]
Proof of concept study of vagus nerve stimulation Project title: Proof of concept study of vagus nerve stimulation Type of research: Applied research Background: Prader-Will syndrome (PWS) is a genetically determined neurodevelopmental disorder characterised from childhood by excessive eating, severe obesity, sex and growth hormone deficiencies, intellectual disabilities, and problem […]
Project title: The development of a method for acceptable and reliable extra-cranial detection of seizures in adults with intellectual disability and treatment-resistant epilepsy. Type of research: Experimental investigation to be followed by an application for clinical trial funding. Background: Epilepsy occurs often in adults with intellectual disability (ID). Across all […]
Inclusive Dance. A blog by Rashmi Becker I have always had a passion for dance. I trained in different styles of dance as a child and have enjoyed it socially as an adult. As guardian to my older brother who has Autism, dance and music was a wonderful way for […]
Dementia and people with learning disabilities: making reasonable adjustments This new report from Public Health England is on improving care for people with dementia and learning disabilities. It is the 17th in a series of reports looking at reasonable adjustments in a specific service area. The aim of these reports is […]
Project title HEaLeD: Hospital Experiences of Adults with Learning Disabilities Type of research Mixed quantitative and qualitative methods Background and scientific rationale The HEALeD study uses mixed quantitative and qualitative methods to characterise the experiences of adults with learning disabilities (LD), their caregivers, and the healthcare workers who look after […]
Project Title EDD-29: Neurodegeneration in Ageing Down’s syndrome (NiAD) Type of Research Multi-centre longitudinal study that will take place over five-years using a cohort of people with DS aged 25 and over. Background Down Syndrome (DS) occurs in 1 in 800 to 1000 live births and is caused by having an […]
Project title: Mixed Methods Evaluation of Interpersonal Counselling Pilot Type of research: Qualitative and quantitative evaluation of single arm pilot treatment study Background & Scientific Rationale: UK Child and Adolescent Mental Health Services (CAMHS) are delivered in a multi-tiered service(1). NHS specialist CAMHS services are in tiers 3/4. The majority […]
Project Title: Imaginator: A pilot study for a brief technology-based intervention to reduce self-harm in young people, harnessing mental imagery Background & Strength of Scientific Evidence: Self-harm (up to 10% of 15-16 year old in UK) has substantial personal impacts and costs on the NHS. In Cambridgeshire self-harm is a […]