Category Archives: PPI Research theme

NEW GUIDANCE: Public Co-Applicants in research INVOLVE, in partnership with the Health Research Authority (HRA) and the NHS R&D Forum have launched a new guide: Public Co-Applicants in Research – guidance on roles and responsibilities https://www.invo.org.uk/posttypepublication/public-co-applicants-in-research-guidance-on-roles-and-responsibilities/ This guidance is intended to help: Researchers wanting to include public co-applicants in a […]

The feedback avalanche. An article by the Patient Experience Library What does good patient experience look like? That question is easily answered by staff who work face to face with patients. Smiles, thank you cards and boxes of chocolates are visible signs that a patient’s experience has been good. But […]

Patient Experience in England Report NHS strategies, from the Five Year Forward View down, state that an understanding of patient experience is central to development of “person-centred” services. However, the 2018 Patient Experience in England report shows that staff teams across the NHS continue to struggle to make sense of […]

Read more about the PPI Feedback Study Loop – how feedback failure undermines health research The first study examining the role of feedback in health research projects involving patients and members of the public (PPI research) has found that a fifth of PPI contributors never received feedback on how their […]

New national standards launched across the UK to improve public involvement in research A set of national standards designed to improve the quality and consistency of public involvement in research launch today at the 2018 Patients First conference – hosted jointly by the AMRC and the ABPI – and at […]

Guidance on co-producing a research project Published by INVOLVE, March 2018 Co-producing a research project is an approach in which researchers, practitioners and the public work together, sharing power and responsibility from the start to the end of the project, including the generation of knowledge. This guidance is a first […]

National survey reveals strong support for health research A national survey has found strong public support for health research, but highlighted that more needs to be done to ensure people from lower socio-economic groups and ethnic minorities are equally confident about health research. The survey, commissioned by the Health Research […]

Public involvement in applications to the Health Research Authority Research Ethics Service This is the third report of a joint INVOLVE and Health Research Authority (HRA) project to analyse the extent of public involvement reported in applications to the HRA Research Ethics Service (RES) and the form it takes. This […]

Report ‘Including family carers: adding value and impact to research’ Different perspectives can ‘broaden the lens’ of studies, say workshop participants Carers have a “pivotal” role to play in the effectiveness of future health and social care-related research, a new report on a seminar hosted by the London School of […]