PPI Research theme
The East of England Public Involvement Forum (EPIF) was jointly hosted by the PPI theme at CLAHRC EoE and NIHR Research Design Service (East of England) on the 30th September 2015 in Cambridge. Simon Denegri (INVOLVE and National Director for Public Participation and Engagement in Research) provided a national perspective. […]
The RAPPORT research team are delighted announce that the report “ReseArch with Patient and Public invOlvement: a RealisT evaluation – the RAPPORT study” has been published in the Health Services and Delivery Research journal on the NIHR Journals Library website. The study set out to find evidence showing whether or not Patient and Public Involvement […]
“15 lessons from doing doctoral research” by Julie Bounford Work on my final chapter is progressing well and I should have the draft finished soon. Meanwhile, my supervisor asked if I would jot down some lessons I had learned about research through doing the doctorate. Whilst the list below is not […]
The NIHR is marking International Clinical Trials Day (ICTD) on 20 May for the third year running. The ‘Ok to ask’ campaign calls on patients and carers to ask their doctor about NHS research they can take part in. This year the campaign includes: a set of promotional materials including leaflets, badges, […]
The ‘IMPRESS’ project: Researching the IMPlementation and evaluation of Patient and Public Involvement (PPI) in CLAHRC East of England RESearch Plain English Summary ‘IMPRESS’ is a study funded by the CLAHRC East of England and run by teams from the Universities of East Anglia and Hertfordshire. ‘IMPRESS’ aimed to find […]
In November 2014, Julie Bounford and Elspeth Mathie (left) from the CLAHRC East of England PPI Theme (along with Julia Keenan, Valerie Dunn and Simon Horton) attended the national INVOLVE conference in Birmingham for people interested in public involvement in NHS, public health and social care research. With different professional […]
I’m a lay member of the Norfolk & Suffolk Patient & Public Involvement in Research Panel (the Panel) and I’ve been involved with health research for well over ten years. The Panel was set up to facilitate and coordinate the involvement of lay members in research. In this blog I […]
It’s tricky, trying to keep the research grounded and applicable, yet robust and not swayed by anecdote. Yet when we take our findings to a stakeholder group we expect personal experience and stories and opinion on what ‘should or should not be done’ we want that to ‘test’ what has […]
Project title: Understanding PPI in older people’s research – how best to enable meaningful PPI in research with older people living in residential settings (RREACH) Type of research: Health services research incorporating systematic review and focus groups. Background & Scientific Rationale: There is increasing recognition of the importance of research […]
Project title: Patients and service users as research partners: what models work best to improve patient experience in long term conditions services? (PatIents as Partners to Improve long term coNditions services – PIPPIN) Type of research: Applied research For the lay summary, please click here Background & Scientific Rationale: Patient […]