Patient and public involvement
Recruiting – Participatory Appraisal project The Eastern Academic Health Science Network is recruiting for a new Patient and Public Voice initiative. This exciting new project will offer free training in participatory appraisal techniques (expenses paid) and reimbursement for individuals to run local participation workshops to help inform and improve health […]
What can be achieved by using creative writing as a social research method? A blog by Harriet Cooper My project is finding out what a ‘rights-based rehabilitation’ experience looks like, from the point of view of disabled people who have been through this process. So, the issue of how this […]
National Feedback Survey: What’s it like being involved in NIHR research? #MyNIHRPPIfeedback What has been your experience of being involved in NIHR research? If you are a patient, carer, service user or member of the public who has been involved in the NIHR’s work then they would like to know. […]
Joined-up listening: integrated care and patient insight As part of a project on integrated care and patient insight and feedback, The King’s Fund have been learning from interviews, round-tables and direct work with six local areas to understand the full potential of patient insight within integrated systems. Find out more […]
Recognising the role of patient data in NIHR The NIHR recognises and values the role of patient data, both in underpinning and leading to improvements in research and care. Examples of types of patient data used in research include: GP records Clinical audits, for example the National Diabetes Audit Disease […]
How PPI changes professionals People with an interest in patient and public involvement (PPI) spend a lot of time talking about definitions. There is, for example, the question of whether members of the public should be described as “patients”, “service users” or “consumers”. Another question is whether they are “involved”, […]
Public Engagement in Research Award Blog by Dr Anna Spathis, Consultant in Palliative Medicine, Addenbrooke’s Hospital, Associate Specialty Director in Palliative Medicine, School of Clinical Medicine and Dr Stephen Barclay, University Senior Lecturer in Palliative Care, University of Cambridge, Principal Investigator, Collaboration for Applied Health Research and Care East of England […]
PPI highlights report for 2017-18 The NIHR Central Commissioning Facility (CCF) has recently published its PPI highlights report for 2017-18. This year, they have opted to report against the new national standards for public involvement. The report covers different aspects of their work in line with the 6 standards: inclusive […]
New Young People Patient and Public Involvement (PPI) group in Cambridge ‘Young People in Research Programme’ comprises of 20 1st year 6th formers from 6 Cambridge schools (mix of state and private). They are able to review documents and meet with researchers to discuss projects or hold focus groups, the latter […]
Researchers behind leading children’s heart surgery survival website launch new patient and public involvement guide RESEARCHERS from a flagship NIHR-funded study helping parents understand survival data about children’s heart surgery have launched a new best practice guide for involving patients and the public in research. The PRAIS 2 study team had previously […]