CLAHRC Fellow 2015
Andy Rose is a registered physiotherapist. Previous roles have included all aspects of acute and chronic rehabilitation. Previously to his current role he worked as a clinical research physiotherapist for the MRC Centre for Neuromuscular Diseases at the National Hospital for Neurology and Neurosurgery and Great Ormond Street Hospital. Now working for the East of England Neuromuscular Care Advisory Service he supports children and adults diagnosed with rare neuromuscular diseases. This involves supporting patients and their families when a diagnosis is made and subsequently whenever advice is needed regarding health, social care and education/employment. Andy's research during this fellowship will be looking at how teenagers and young adults discuss, or fail to discuss, the issues relating to having a life limiting condition, often many years before any actions regarding end of life care are required. The intention is to develop a region wide professionals' consensus on how to initiate and follow-up such discussions with young people.